Podcast: Providing Global Concierge Services to Facilitate Rare Disease Clinical Trial Participation
Clincierge has a mission to support participants in clinical trials, particularly for patients with rare diseases. Since many rare diseases require a patient caregiver to accompany a trial participant, Clincierge also manages the logistics for both of those people. The result of these patient-centric efforts is greater diversity in recruitment, higher retention rates, and higher participant satisfaction.
Scott explains, "The purpose for Clincierge is to improve clinical trial performance by improving the patient experience. Depending upon the disease state, different patients require different types of support to enable them to participate in a clinical trial. It may be a geographic location for a family so that a pediatric patient can participate in a trial. It may be language barriers, so we provide interpreters. Along with that relocation may come the need for housing that's funded, prepaid, meal stipends, ground transportation, visa services."
"So what we do is look at each individual patient's need and design the services that support them, enable them to get to the clinical trial visits so that they can participate, and the research team can get their outcomes data."